Thanks for reaching out.
I know you have read the latest FB thread so I probably don’t have too much more to add at the moment, other than to say I’m sorry you are faced with this situation (as if you haven’t got enough on your plates) and I know time is of the essence if Summer is about to commence radiotherapy.
I don’t think we can do too much more until we’ve heard back from Sydney and ANZCHOG - which we hope will happen early next week.
But perhaps in the meantime you can inform your doctors in Perth about the Gold Coast child mentioned in the news article. The paeds oncology world is a small one, particularly in Australia and so they mostly know each other. I would be very surprised if they haven’t already been speaking to each other about this issue.
Keep positive, we will do whatever it takes to get Summer this antibody (including going down all the avenues you suggested), but I’m hopeful wont need to and the doctors will sort it out for us!!
Take care and I will speak to you next week,