Post treatment options


(Daniel Witt Corell) #1

Hi

As many others, we are looking into treatment options after frontline treatment.

We are based in Copenhagen, Denmark ( Rigshospitalet ) and therefore under the SIOPEN protocol. My son is 5 years old and will finish immunotherapy in april. He was cleared in a MIBG scan just before christmas. Stage 4 HR NBL - he is not mycn amplified.

What options do we have now and whats in the pipeline i near future.

We know about two options as it is now:

  • DMFO

  • Bivialent vaccine

Are there any other options - preferable in Europe?

Is SIOPEN talking about some kind of maintainence treatment after frontline?

Thanks for your help.

Daniel


(Daniel Witt Corell) #2

Found this site which gives an good overview over trials in general when it comes to Neuroblastoma.

https://antidote.me/match/search/results/0a9691cc-07ba-465b-b08f-82e21344c817/1