Phase 2 DFMO preventative trials

Hi Rochelle,

Could you share the trade name/pharmaceutical company of DFMO? Do you know where parents can buy it if not participated in the trial?

Thanks.

Below are a couple of links to info about DFMO/difluoromethylornithine. Unfortunately, I don’t have direct answers to your questions. Maybe the following will help in your research. If you Google search “DFMO distributors” a couple of websites pop up, but I cannot personally vouch for any of them and I recommend consulting with your child’s doctor first, especially regarding dosage. I truly hope you find all the answers you’re looking for.

https://beatnb.org/dfmo/

https://beatcc.org/clinical-trials/

Thanks, Rochelle!
It seems oral DFMO has not been commercialised so anyone who wants to take it have to participate in the trial…

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Correct, it is not FDA approved or available off-trial (other than compassionate use) at the moment in the US.