Phase 2 DFMO preventative trials

Hi Rochelle,

Could you share the trade name/pharmaceutical company of DFMO? Do you know where parents can buy it if not participated in the trial?


Below are a couple of links to info about DFMO/difluoromethylornithine. Unfortunately, I don’t have direct answers to your questions. Maybe the following will help in your research. If you Google search “DFMO distributors” a couple of websites pop up, but I cannot personally vouch for any of them and I recommend consulting with your child’s doctor first, especially regarding dosage. I truly hope you find all the answers you’re looking for.

Thanks, Rochelle!
It seems oral DFMO has not been commercialised so anyone who wants to take it have to participate in the trial…

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Correct, it is not FDA approved or available off-trial (other than compassionate use) at the moment in the US.