Organizations doing neuroblastoma research


(Kyle Matthews) #1

This is a fluid list of organizations working on beating neuroblastoma through research. Replies to this post will be verified and added to the original post. Note: this is currently very United States heavy. Please fill in the blanks!

  • NANT: New Approaches to Neuroblastoma Therapy - The NANT consortium offers hope and resources to patients and their families with relapsed/refractory neuroblastoma when front-line, standard therapy fails.
  • NMTRC: Neuroblastoma Medulloblastoma Translational Research Consortium - The NMTRC is a group of 25 universities and children’s hospitals headquartered at the Helen Devos Children’s Hospital that offer a nationwide network of childhood cancer clinical trials developing novel therapies for high-risk neuroblastoma and medulloblastoma.
  • MSK: Memorial Sloan Kettering - Memorial Sloan Kettering has been at the forefront of developing innovative drugs and treatments that prolong survival for people with neuroblastoma but don’t cause debilitating long-term side effects.
  • CHOP: Children’s Hospital of Philadelphia - The Cancer Center at CHOP is top ranked in U.S. News & World Report’s rankings of Best Children’s Hospitals. Their center is also ranked No. 1 in the nation in Parents magazine’s 2013 report of 10 Best Children’s Hospitals.

(Monica Jean Faucheux) #2

I’m hoping this is relevant towards this post but NCCS has donated close to $2 million for various neuroblastoma research, most recently the INRG database. Here is a link to grants funded by NCCS: http://neuroblastomacancer.org/medical-research.php. A side note: approximately 96% of funds raised by NCCS go directly towards research for a cure for neuroblastoma (volunteer based - no salaries).


(Kyle Matthews) #3

Thanks @MonicaFaucheux! Definitely relevant. I’m hoping this thread though will be more the groups doing the research - we may also benefit from a separate post of nonprofits funding work! Because of Ezra jumps in there as well, with over $700,000 of funded research in 5 years. I love seeing all these groups coming together to beat this stupid cancer. It takes all of us.


(Monica Jean Faucheux) #4

You may be interested in this project: http://inrgdb.org/about/. The University of Chicago (Comer Children’s Hospital) has a pretty great team of researchers. Truly it does take all of us together to find a cure. Thankful for all of the strides made since the 90s!


(Kyle Matthews) #5

I’m aware of it for sure! An important resource. I am a fan.


(Craig Box) #6

Children’s Cancer Institute in Australia is doing research too. https://ccia.org.au/neuroblastoma-our-battle/