CNCF: Children’s Neuroblastoma Cancer Foundation
Solving Kid’s Cancer
SKC is an nonprofit organisation focused on funding promising research in the area of paediatric cancer. @ludwinski the director of research is a member of our community.
SKC run a yearly parent’s conference: http://solvingkidscancer.org.uk/parent-conference-2016/
ANR: Advances in Neuroblastoma
ANR is a 2 yearly conference covering advances in Neuroblastoma. Though primarily a conference for NB oncologists and researchers. It has a parent’s day. 2018 is planned to be in San Francisco.
In 2016 all the parent’s day sessions were recorded and are available online.
###ACOR: N-BLAST mailing list
The ACOR mailing list is a treasure trove of old Neuroblastoma related information. It was started 20 years ago and as a support forum similar to this site.
Facebook: Neuroblastoma Support group . You are Not Alone Ask Away.
The Facebook group is managed by Tiffany Seibel-Howard and contains very regular updates and discussions related to NB.
Facebook: Neuroblastoma Family Support Group
The Facebook group is managed by @MonicaFaucheux and contains very regular updates and discussions related to NB.
The INBRACED site contains technical article links related to research news