Hey all! If you are involved in a nonprofit which fights neuroblastoma, this is the thread to introduce your mission, your nonprofit, and let folks know you’re here for them to reach out to.
Because of Ezra seeks to raise funds and awareness for neuroblastoma cancer research making a difference in kids’ survival today. We want to change the story for the next family by finding viable treatments and ultimately, a cure for neuroblastoma.
We partner specifically with researchers, physicians, and scientists who fit our goal of making a difference in survival today. We are committed to knowing the neuroblastoma research landscape and specifically funding patient-affecting trials and research.
That’s the official mission, vision, and model. We’re big on getting all the people involved in the neuroblastoma community (nonprofits, families, government, research orgs, scientists, physicians, etc) on the same page. We listen to and participate in the conversations across the world to see what’s happening. We pay close attention to what needs to be pushed forward, or what is spinning wheels without going anywhere, or where improvement can be made.
We’re a younger group, this being our 6th year, but have accomplished a lot and are just getting started. We’re proud to be here as one of the founding nonprofits, and hope we’ll eventually not even need to do any of this, as neuroblastoma will come with a promise of “we know how to beat this.”
My wife Robyn and I lost our first-born son Ezra to neuroblastoma in 2010, and this is how we continue to be his parents.