Feeling curious today about what you all do or have done for weight gain and nausea! Been hearing different testimony on how to treat both, and intrigued!
Weight Gain - Carter hasn’t eaten in months. After first 3 rounds off chemo he would get an appetite at home a few days before going back to start all over. He hates the smell and taste of just about everything. He will sip on water all day, apple juice, and a little coke when he says he needs calories> Heard of a few things to help but don’t know anything about any of them. No matter what we do, or what we mix it with, he is not fooled by Pedia Sure, Boost, or Carnation Instant breakfast. He has a NG tube and is on Pediasure Peptide for 16 hrs a day usually. He pukes every single day especially in the morning. Nothing has helped. He is on TPN during SCT and no feeds which is ok when he is i pain, but I feel upset about him being on it a long time because of the long term effects and it makes him never want to eat or drink. Here is a list of new things that i am curious about. I appreciate all of your help!
Nausea is a constant problem. QTC prevents any meds during chemo or after. We are day plus 5 on 2nd SCT. He was just permitted Kytril every 12 hrs and going to add Benadryl back in today since his QTC has improved. He can’t have Ativan because it makes him a crazy mad man.
We will also be starting Radiation in a few weeks and very nervous about side effects of that, Any advice would be greatly appreciated!