Hi everyone. My name is Tara and I too traveled/still traveling this dark and scary road. My son Jackson was diagnosed at 2 weeks old with stage 4, intermediate risk, non-amplified NB. The primary tumor was along the spine from t-2 to t-6. There were also tumors on both adrenal glands and it had metastasized to the liver. It was not seen in utero, and believed to be missed because of the location along the spine.They said It would resemble the lungs when not taking on oxygen. Luckily It was caught by my pediatrician during a routine 2 week well check up, when his belly became distended, seemingly overnight. He was eating beautifully, having bowel movements, and was perfectly content. He showed NO SIGNS OF DISCOMFORT. The pediatrician thought maybe a blocked bowel or something of that nature was to blame, and sent us to the ER for testing. After an x-ray, ultrasound, and MRI, we received our preliminary DX of NB, and we were immediately transferred to another local hospital (Hackensack University Medical Center in NJ...we also seeked a 2nd opinion at Sloan) The next day, with our baby only 15 days old our, life spun out of control. Jackson had a liver biopsy, a broviac placed, and extensive MRIs done. We followed the COG protocol, and after 4 rounds of chemo, Jackson is NED and has been for 2 months now. He's truly my hero. He never really showed side effects from chemo, was absolutely always smiling, continued to grow/put on weight, and has met developmental milestones appropriately. We are so thankful for where we are today. During our journey, our community reached out and rallied around us in our time of need. They raised over 70k dollars in the matter of 2 months and we feel eternally grateful, so in turn, we have started the JacksonStrong Foundation. Our mission is to raise awareness, and provide financial and emotional support to families suffering with a pediatric cancer diagnosis. Thank you for starting this community. It's unfathomable how it can continue to be referred to as rare, when so many of us are sucked into this scary scary place. God bless all the little angels, and all of you still in treatment. ...your children will be in my family's prayers.