I am indian my daughter neuroblastoma stage 4 high risk


(Elangovan) #1

This is elangovan from chennai,
my daughter pranisha (5years) old ,
affected by neuroblastoma stage 4 (HR) cancer. Now chemotherapy and surgery done
by “cancer institute adyar”
and waiting for auto SCT(BMT) treatment. Hospital Tell’s there is no further advance treatment and may be cancer relapsed.
Kindly suggest and guide me for immune therapy’s and vaccine treatment if any at anywhere
Need your kind support and reply


(frank kalman) #2

Hello Elangovan,

One of the best neuroblastoma doctors in the world is Indian, and he is my daughter’s doctor. He and his team has brought her back from relapse four times. Dr. Shaquille Modak is at Memorial Sloan-Kettering and I highly recommend you contact him there. He is in New York, New York.

Where so you live?

Frank Kalman
frank@endkidscancer.og


(Elangovan) #3

Live & treatment in chennai ,(india)


(frank kalman) #4

I think Dr. Modak would be able give good advice on how to get further
treatment for your daughter. I misspelled his name. Dr. Shakeel Modak. He
practiced in India before coming to the West. His phone number is
212-639-5954.

Frank Kalman, Executive Director

End Kids Cancer

805-550-7682

Email: Frank@EndKidsCancer.org frank@endkidscancer.org

Web: www.EndKidsCancer.org http://www.endkidscancer.org/


(frank kalman) #5

I still recommend you contact Dr. Modak. I think he would be able give good
advice on how to get further treatment for your daughter. I misspelled his
name. Dr. Shakeel Modak. Before I went to see Dr. Modak and his team. He
practiced in India before coming to the West.

Frank Kalman, Executive Director

End Kids Cancer

805-550-7682

Email: Frank@EndKidsCancer.org frank@endkidscancer.org

Web: www.EndKidsCancer.org http://www.endkidscancer.org/


(Elangovan) #6

Doctor contact number (india)


(Sam Saffron) #7

@ludwinski @birdni would you have any idea about ch14:18 availability in India?


(Donna Ludwinski) #8

Unfortunately not available. India interestingly doesn’t allow unapproved
drugs – so hu3F8 and d-beta aren’t possible. Drug supply is the problem for UT’s unituxin.

Will be interesting to see if ymabs expands to India, that would be fantastic.


(Nick) #9

I heard they have strict rules on drug trials run by companies outside of india itself? I don’t know whether or not there is any truth in that.