4 months into diagnosis it seems like my life has become NB and work.
Nothing else really exists in my world except for occasionally watching a bit of TV, minimal amounts of exercise and family time. Friends… forget about it. Restaurants, movies etc, forget about it. A short weekend break, forget about it.
I know that at some point, life has got to go back to “normal”, but the cloud of possible relapse will always be there, side effects need to be managed and so on.
Just wondering… for people living with this for a while, how long is it before things go back to “normal”? What is the new “normal”?
We are just finishing transplant in a high risk protocol, what should I expect in the immunotherapy phase, do you get proper breaks from the hospital?