Hi there! My name is Yuan and I just joined this great forum.
I came to Philadelphia in October, two weeks after my then 26-months-old daughter (Luna) was diagnosed with high risk NB in Shanghai, China. We have been in treatment at the Children’s Hospital of Philadelphia, just finishing 2nd cycle of chemo.
The treatment plan for us at CHoP is standard COG so very intense. We came to CHoP mostly because my husband is from Philly so we could have a “home base” here at his parents’ place. Also because we hear it’s a good hospital for neuroblastoma treatment. However, the more I read and learn about this horrendous disease and it’s treatment, the more I am drawn to MSK… Toxicity and side effects are big concerns of mine. I love how MSK doesn’t do transplants (while CHoP‘s protocol includes 2). It just seems that MSK has more stuff in their arsenal and there’s more flexibility and a higher chance for customized treatment with less toxicity. My husband, however, believes that CHoP is the best place to be and can deliver the highest survival rate which is the only thing he cares.
I plan to contact MSK soon for a better assessment of our situation. Meanwhile, I would really welcome thoughts and intel from you guys - anyone who’s had experience with either of these two hospitals, or know plenty about them.
We will have more problems to solve if we are to move to New York. Money and insurance are two big ones. But I want to at least try to get Luna in the best hands for treatment. This is the least I could do as her biggest advocate.
Thanks in advance!