My nephew was diagnosed in 2014 with stage 4 neuroblastoma. He’s through cancer treatment (chemo, surgery, radiation) but was admitted again in spring after his stomach burst … So he’s back on his feeding tube.
Anyway, it’s been a long couple years for my family. My first daughter was also born a month early 3 days before my nephews diagnosis, so while he fought in on the HOT unit my daughter spent a few days in the NICU. Rough couple months.
Anyway, throughout my nephews cancer treatment and still now people will randomly ask “so how’s raiden doing?”
I know they mean well, but that’s a loaded question. It always makes me cringe. Inside I’m thinking - well, he’s not dead. He’s on a feeding tube. He doesn’t quite have the physical capacity of most kids his age. His stomach is dotted with scars and lines. He talks about his “tubes” and “the doctors house.”
But, if we consider where he was at diagnosis, then good? But if we compare him to his brother, well what? And to that point, no one ever asks me how his brother is doing.
Anyway, I brought this up to my family and they all agreed they dislike getting asked that question. We launched a nonprofit based on our experiences and would love to launch an awareness campaign about this question - but couldn’t really think of an alternative.
Are we just stuck with It because of the situation?
Thanks, and best wishes to all families fighting neuroblastoma.