General


Introductions, welcome ( 2 3 4 5 6 7 ) (126)

This thread is a place to say hello, and a little bit about yourself. Why are you here? How are you connected to neuroblastoma?

Online Resources for Neuroblastoma Parents (6)

CNCF: Children’s Neuroblastoma Cancer Foundation The CNCF organisation has advocate for Neuroblastoma and run a yearly conference for parents. Be sure to check out the Neuroblastoma Parent’s Handbook and past CNCF confer…

Persistant disease (2)
Boney relapse options - how to choose? Ventoclax? (1)
Band of Parents annual meeting 2019 (1)
Negotiating treatment costs (10)
What is the current state of anti idiotype vaccines? ( 2 ) (21)
Post treatment options (2)
Soft tissue disease (4)
Residual minimal disease - abdominal (2)
N Myc amplified Neuroblastoma (3)
Family Support vs. Knowing Your Doctors (6)
Relapse HRNB Post SIOPEN HRNBL 1.7 (3)
What Early symptoms did you find (4)
Top US NB treatment facilities/protocols (3)
I am indian my daughter neuroblastoma stage 4 high risk (9)
2de relapse..we need your advise (4)
I feel stupid for asking this, but did anyone try CBD oil? (3)
My little buddy is gone (6)
Unituxin - immunoterapy (13)
What advice would you give to newly diagnosed? ( 2 ) (26)
We received some bad news (4)
What after the immunotherapy (7)
MIBG experimental therapy (7)
We beat it! But we have some other problems! (3)
Front line treatment us vs eu (8)
Because of... Tessa (1)
Unituxin (dinutuximab) worldwide shortage ( 2 3 ) (41)
High risk NB relapsed in the bones, seeking help and suggestions (7)
Roaccutane resistance (1)