General


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Introductions, welcome

This thread is a place to say hello, and a little bit about yourself. Why are you here? How are you connected to neuroblastoma?

124 March 16, 2019
Online Resources for Neuroblastoma Parents

CNCF: Children’s Neuroblastoma Cancer Foundation The CNCF organisation has advocate for Neuroblastoma and run a yearly conference for parents. Be sure to check out the Neuroblastoma Parent’s Handbook and past CNCF confer…

6 February 23, 2017
Recently diagnosed 1 November 14, 2019
SIOPEN Outcomes 8 November 9, 2019
I feel stupid for asking this, but did anyone try CBD oil? 8 November 7, 2019
Has anyone discussed the ZIKA VIRUS? 2 November 5, 2019
Haploidentical transplatation for relapsed neuroblastoma 3 October 19, 2019
Boney relapse options - how to choose? Ventoclax? 3 July 1, 2019
TVD After rapid COGEC 3 June 15, 2019
Any tips for immunotherapy with ch 14.18 with GM-CSF, Interleukin-2, and Isotretinoin 2 June 10, 2019
Persistant disease 4 March 22, 2019
Negotiating treatment costs 10 January 15, 2019
Band of Parents annual meeting 2019 1 January 28, 2019
What is the current state of anti idiotype vaccines? 21 January 15, 2019
Post treatment options 2 January 9, 2019
Soft tissue disease 4 November 11, 2018
Residual minimal disease - abdominal 2 November 9, 2018
N Myc amplified Neuroblastoma 3 August 1, 2018
Family Support vs. Knowing Your Doctors 6 July 27, 2018
Relapse HRNB Post SIOPEN HRNBL 1.7 3 June 8, 2018
What Early symptoms did you find 4 May 29, 2018
Top US NB treatment facilities/protocols 3 May 15, 2018
I am indian my daughter neuroblastoma stage 4 high risk 9 April 6, 2018
2de relapse..we need your advise 4 January 29, 2018
My little buddy is gone 6 December 3, 2017
Unituxin - immunoterapy 13 November 30, 2017
What advice would you give to newly diagnosed? 26 November 28, 2017
We received some bad news 4 September 21, 2017
What after the immunotherapy 7 July 20, 2017
MIBG experimental therapy 7 June 21, 2017