Topic Replies Activity
Introductions, welcome

This thread is a place to say hello, and a little bit about yourself. Why are you here? How are you connected to neuroblastoma?

124 March 16, 2019
Online Resources for Neuroblastoma Parents

CNCF: Children’s Neuroblastoma Cancer Foundation The CNCF organisation has advocate for Neuroblastoma and run a yearly conference for parents. Be sure to check out the Neuroblastoma Parent’s Handbook and past CNCF confer…

6 February 23, 2017
Bone Relapse help 14 December 3, 2019
What to do next? Stage 4 10year old battling for 6 years 4 December 2, 2019
Recently diagnosed 2 November 27, 2019
Soft tissue disease 5 November 21, 2019
Incomplete resection 2 November 21, 2019
Phase 2 DFMO preventative trials 84 November 12, 2019
SIOPEN Outcomes 8 November 9, 2019
I feel stupid for asking this, but did anyone try CBD oil? 8 November 7, 2019
Has anyone discussed the ZIKA VIRUS? 2 November 5, 2019
hu3F8 available in Hospital Sant Joan Déu in Spain (and other hospitals) 33 October 24, 2019
Haploidentical transplatation for relapsed neuroblastoma 3 October 19, 2019
Is it safe to skip high dose chemotherapy and BMT 15 October 2, 2019
MSK Vaccine trial experience? 2 September 5, 2019
BEACON for relapse or alternative trials? 4 July 31, 2019
Boney relapse options - how to choose? Ventoclax? 3 July 1, 2019
TVD After rapid COGEC 3 June 15, 2019
Any tips for immunotherapy with ch 14.18 with GM-CSF, Interleukin-2, and Isotretinoin 2 June 10, 2019
New treatment dillema 2 June 9, 2019
Photon vs proton radiotherapy 11 April 20, 2019
Zika virus as an oncolytic treatment of human neuroblastoma cells requires CD24 2 April 10, 2019
Persistant disease 4 March 22, 2019
Negotiating treatment costs 10 January 15, 2019
Tandem transplant offers significant advantages when combined with immunotherapy 8 March 13, 2019
Progression after radiation 8 February 28, 2019
Tips for accutane treatment 10 February 21, 2019
Estrogen causes neuroblastoma cells to mature into neurons 1 February 20, 2019
SIOPEN vs COG vs MSKCC+? 2 February 19, 2019
Band of Parents annual meeting 2019 1 January 28, 2019